Rob and I in front of my parent's Christmas tree
Thursday, December 25, 2008
Merry Christmas from my family to yours!
Rob and I in front of my parent's Christmas tree
Wednesday, November 19, 2008
Musical Chairs? Musical Hospital!
Now, about my EEG. I have to say it was one of the most awesome experiences I have had in the hospital. It started normal, my tech came in and introduced himself as Mike. He then asked me how I pronounced Mullins and asked me if I was related to Rich Mullins that wrote the song "Awesome God." I told him yes on my husband's side and we just started to have small conversation. After a few minutes, he asked me if my president won the election. I told him no, he said his didn't either, but then the awesomeness started. He said he was waiting for his King to return. I about fell out of the bed. I told him I was too and the conversation began. I mean, what an awesome way to start a conversation about Jesus. My EEG should have taken around 30 minutes, but it ended up taking closer to an hour and a half. Come to find out, my tech travels around with his brother and another friend playing music and preaching. It was incredible just to have a conversation with someone who has so much passion about sharing the Gospel that it just filled me with joy. Their ministry's name is Cross Hair Vision and I'm glad they are out there spreading the Good News. Thanks Mike!
Friday, October 31, 2008
Light the Night
Thank you to each of you who supported our team in some way- either by donating or by walking! We had 31 participants sign up on our team which is great!! We had one of the larger teams out there! We are still raising funds through November so if you meant to donate and didn't, you still have time. Our team is half way to it's goal of $10,000 and I really want to meet that goal. It is a HUGE goal for a first year team, but I know it can be done- if not this year, then next year. If you would like to donate by online donation, please go to the right side of our blog and click on the link for the Lymphoblasters. Then click on one of our names to the right on that page and it will take you to the donation site. If you would like to donate by cash or check, please mail it to us made out to the Leukemia and Lymphoma society. We cannot do this without you!
Here's a few pics from the walk. Hope more of you can join us next year!!
The kids had a blast! Here is Emilee with her balloon hat!
Wednesday, October 29, 2008
The SCOOP...
Okay, well it seems that I have rambled on for quite some time now. Hopefully I gave you all the information. I will try to get better about posting, but I can't promise anything. Thank you all for all your prayers...even still. I still need them just to get through all of the rest of this. Please pray that this next round will not be as bad so I can have a good Thanksgiving with my family. Please pray for wisdom for Dr. Lee and Dr. Burger as they decide about my eighth round. God is so good and I can't wait to see what He has planned for me next!
Wednesday, October 8, 2008
Back in the Hospital AGAIN!
Prayer requests:
Please pray that God would heal me from whatever is knocking me down so I can go home either Thursday or Friday.
Please pray for Christian Leone. I heard this story second hand so if I don't get it all right, I'm sorry. Christian is in high school and sustained an injury during a football game. He went into the surgical center and when they gave him a shot, it went into a vein instead of muscle. It caused his veins to collapse and him to go blind. Last I heard, he has some of his eyesight back, but it is blurry. Please pray for a quick and complete recovery for him. He is the nephew of some of mine and my brother's friends.
Please pray for a lady named SueSue. I met her today in the hospital. She was diagnosed in August with AML Leukemia. She has a good attitude, but she told me she doesn't have any insurance. I told her about the Leukemia and Lymphoma Society's program that can help. Hopefully they will be able to help her. The type of Leukemia she has apparently doesn't have a very good success rate, so please pray for her to recover from this terrible illness and that her medical bills will be within reason or she receives help.
Thank you all for praying for not only me and my family, but also for these other people. I believe in the power of prayer! It has been proven through me already!
Thursday, October 2, 2008
A Hodge-Podge Post
I started chemo back on Tuesday, September 2nd. After my five days of chemo, my blood pressure spiked and I ended up having to stay in the hospital a few more days. They have no idea what made it spike, but it was 200 something over 100 something. It was really high. They checked it every 30 minutes during the night so needless to say, I didn't get any sleep that night. I went home on Tuesday, September 9th. I was very weak and never felt quite right. On Thursday, the 11th, I went into the doctor and back to the hospital. I had developed an infection in my gastrointestinal system. It was miserable. I spent another seven days in the hospital getting antibiotics. It was extremely scary because the last time I went into the hospital with a fever, I ended up in ICU. I also had mouth sores (another unpleasant side effect of chemo), so I couldn't eat or talk for five of those wonderful days in the hospital. I did get to watch the Hurricane Ike storm from the top floor of the hospital. It was really a sight to see. Because of these lovely hurricanes we have been having, Rob was sent to do disaster relief with his company. He spent one week in the New Orleans area and three in the Houston area. Thanks so much to my mom for staying for the two weeks I was in the hospital taking care of the girls, and thanks to my mother-in-law for helping out last week. I was supposed to start chemo on the 22nd, but I was still too weak and my counts were not high enough so we delayed it a week. Apparently, my bone marrow is tired of rebuilding itself. Not that I blame it at all, I'm tired of this too, but I just keep telling myself only three more to go.
Well, I started this round of chemo on Monday, September 29th and it hasn't been too bad. They put me in a double room but blocked it off so I wouldn't get a roommate. It is a pretty big room for one person so that is nice. My doctor reduced my chemo by 20% so hopefully that will keep me feeling a little better this time. I have had very bad headaches and my blood pressure has gone up, but not as bad as the last round. Rob came home from Houston on Friday night so that was really nice. My parents came in on Wednesday and are helping out with the girls since Rob has to work late sometimes. As long as my blood pressure stays close to normal, I will get to go home tomorrow afternoon. Please pray for my blood pressure to stay down, my headaches to go away, and for me to feel good when I go home. I do not want to have to come back into the hospital with an infection or anything this week. I don't want to have to delay any more rounds either. Two more to go...
Thank you for all your prayers. Please keep them coming. I can feel each one of them!
With God, WE WILL BEAT THIS!!!
Saturday, September 27, 2008
Light the Night Banquet
Here are just a few facts about blood cancer:
Every five minutes, someone in this country is diagnosed with blood cancer.
Every ten minutes, someone loses the fight.
Leukemia causes more deaths than any other cancer among children.
Lymphomas are the most common blood cancers.
The myeloma survival rate is only 32 percent.
If you have any questions regarding the society or the walk, please contact us. We would love to give you any information or get you in contact with someone at the society who can send you any information you need.
Rebecca, Me and Tara (from the society)- they are both over the East Texas walk with Tara focusing on the Tyler walk
Even my nephew came to see me speak
With God, WE WILL BEAT THIS!!!
Blood Drive
Me and Tara from the Leukemia and Lymphoma Society
A special thanks to Tara and her fiance Bobby for driving in from Dallas to help out with the blood drive. It was so much fun raising money for a great cause and helping Carter save lives.
With God, WE WILL BEAT THIS!!!
Sunday, August 24, 2008
MD Anderson and the "R" Word
Thank you to each of you who have lifted my name up in prayer. I can never express my full appreciation to you.
Thursday, August 7, 2008
Chillin' at Home
On another note, I have asked you to pray for little Sully Farrar in the past. Sully lost his fight with leukemia last week and went home to be with the Lord. Please remember his family as they go through this rough time.
Wednesday, August 6, 2008
We Need Your Help and Participation
There are 3 ways that you can donate. You can mail us cash or check made out to the Leukemia and Lymphoma Society. You can also go to our team site, Lympho Blasters and click on a team mates name on the right hand side. From that page you can click on a specified amount or select other.
To join our team, you can also click here and click join at the bottom of the page next to our team name. We would love to have each of you here with us that evening. We really NEED your help in making this a successful walk not only for Vanessa and I, but for the Leukemia and Lymphoma Society. They have been a great support channel for us while Vanessa battles this cancer.
For everyone that has asked us how you can help us, well this is a great way to do that. We want to thank you in advance for your contributions as well as those that are walking with us, it is going to be fun. To learn more about the Light the Night Walk, you can click here
The Leukemia & Lymphoma Society's (LLS) Light The Night Walk is an annual event to raise funds for cures. It's the nation's night to pay tribute and bring hope to thousands of patients and their families.Funds raised through Light The Night Walk support the work of hundreds of the world's best and brightest researchers in their search for better therapies and cures for leukemia, lymphoma and myeloma.Anyone can take part—children, adults and seniors are all welcome. This is a casual Walk with no fitness requirements.
Now in it's 10th year, Light The Night is celebrating a Decade of Difference. During this time:Nearly half a million patients and their caretakers have called the LLS Information Resource Center and received critical information about blood cancers, therapy options and issues surrounding treatment and survival. Nearly $40 million was disbursed to patients through the LLS Patient Assistance program to help them get the treatment they needed to fight their cancer. Over 100,000 patients and family members found comfort and hope through LLS First Connection and Family Support Groups.
LLS granted $425 million to more than 400 scientists searching for cures and improved treatments for patients. LLS funding contributed to the development of a host of new drugs that are affecting patient survival and quality of life. LLS-funded researchers began working in novel areas that hold great promise for finding cures and better treatments including new, less toxic stem cell transplants, immunotherapies and other targeted therapies. Our Advocacy Network has successfully supported pro-patient legislation that will: Help advance blood cancer research Extend Medicare coverage to include oral anti-cancer drugs Help fund efforts to reach underserved blood cancer patients
Please bring help and hope to thousands of people battling cancer.
Click here to learn more about the Leukemia and Lymphoma Society
Friday, August 1, 2008
A NEW ROOM!!!
She wants me to express her sincere thanks to each and every single one of you that prayed for her, visited her from many different states, and reached out to myself and her family with all types of assistance. There was overwhelming love, prayer and support for us during this trying moment. We are forever grateful to each and every single one of you.
She has approximately 2 weeks to recoup and get her immune system back up before her fifth round of chemo starts. Let's pray that she has a great 2 weeks and recovers well for a fresh start. We love you all and God Bless you.
With God, We Will Beat This!!
Wednesday, July 30, 2008
ICU Update 7/30/2008
I spoke to Dr. Lee tonight and she informed me that it was indeed pneumonia in her right lung. It appears that the antibiotics and antifungal meds are working. She will not be getting chemo next week. The next chemo has been delayed atleast 2 weeks. We were hoping we could avoid that, but we also know we need her to recover from this last incident and allow her blood counts to get wehre they need to be.
Please continue, as you all have been diligently, praying for Vanessa. We need her strength to come back, blood counts, neuropathy to go away and continued healing from the pneumonia. I also received an email from Tracy Herrin. She has requested that we add a friend's sister to our prayer list and I have pasted her email below.
"Please add Carolyn Graham to your Prayer Warrior List. She is the sister of a co worker of mine. They found out today, that her whole body is eaten up with cancer. Things do not look good. But we know how the power of prayer can work! Thank you so much! And Praise God for all that He does!"
It was AWESOME to see our old Sunday School teachers from Summer Grove Baptist Church in Shreveport. Steve and Debbie Wilson are unbelievable teachers, mentors, couple and love God more than anyone I could possibly know. If you have never been to one of their marriage seminars, I highly recommend you do so. Vanessa and I went to one of their marriage retreats before we got married and that seminar helped us lay a foundation for the marriage we had planned few months later. If you want to hear a different perspective on marriage, an eye and heart opening experience, sign up for one when they come to town. AMAZING!!
We love you all and God Bless. He is an Awesome healing God.
With God, We Will Beat This!!
Monday, July 28, 2008
ICU Update 7/28/2008
Vanessa has not needed to use her pain meds in a few hours as she states her pain is not as bad. She still has a temp over 100. Her oxygen is holding above 95%. Her blood counts are .1 white bloodcells, platelets are 26 and hemoglobin is 12.7.
Preliminary reports are possibly showing early stages of pneumonia. Her pulmonary doctory didn't want to officially claim it because her x-rays weren't conclusive. He stated whether its pneumonia or somethings else, they are treating it with antibiotics.
We are excited to see Gods work with the news we received this morning. Thank you for your love and support. I know the prayers haven't stopped, but keep them coming. She is not out of the clear but we know we serve the great physician.
With God, We Will Beat This!!
Sunday, July 27, 2008
Late ICU Update (Email)
Her blood counts are beginning to improve. Her hemoglobin was 12.7, which is normal. Her white blood counts are still.1 and her platelet count had gone up to 50. I was told to not concentrate too much on the white blood count until they get this infection resolved. Once we have the infection under control, her white blood counts should begin to go back up. Her temperature before we left the hospital was a 99.6. Praise God. Her temperature finally got below 100 and has so far maintained. We need to get it at normal and keep it normal for 24 hours before she can be released from ICU.
I am not sure if I mentioned her chest x-ray in any earlier emails, but it came back normal.
We had many sweet dear friends come from Shreveport and showed alot of love and care as they sat and spoke to myself and Vanessa's parents. Some went in and visited Vanessa, some just came to support us in the waiting area. We had some from our Sunday School class. This is BEST class. They have supported us,loved on us, provided meals for us, monetary means have been provided and a bunch of small things that has added up to make life a bit easier. We are so excited God brought this Sunday School class to us from Green Acres Baptist Church here in Tyler.
I want to send out a special THANK YOU to Jeff and Suzanne Hogg. We love you guys and appreciate you keeping Emilee for us and getting her to the church this morning at 6:30 am and seeing her off to her first youth group trip to Houston. Your love and kindness has shown God to us through you. You guys help make our Sunday School class what it is.
There has been so much love and outpouring support to us during this trying time. All of you who have emailed, called, text messaged, prayed, cried, laughed, sat, stood and anything else that I haven't mentioned has been an awesome expression of God's love for his children. I cannot say THANK YOU enough.
God Bless and have a great night or an even better week this week and may God be with you all.
With God, We Will Beat This!!
Saturday, July 26, 2008
ICU Update (email)
I had my one hour moment at home this afternoon where I had to cry, sink my head and my pillow and do more crying out to God for healing upon Vanessa. I am doing ok right now emotionally, but still, as we all are, concerned, deeply concerned. However, Vanessa and I are still keeping our strong faith in the Lord and we know that he is in control. We are still believing that With God, We Will Beat This!!
p.s Sunday morning, I am going to be going to our Sunday school class at Green Acres Baptist Church here in Tyler. If you are able to, around 945-10:00 I am going to have our Sunday school class lay hands on me and reach out and pray for Vanessa. If you can join me at this time and say a silent pray or wherever your at, stop and pray for her at that time, I would greatly appreciate it. We love you guys and God Bless.
p.s.s. I will send another update after our first visitation at 10:45 tomorrow morning.
ICU
With God, We Will Beat This!!
Friday, July 25, 2008
Update on Vanessa
Vanessa had a great weekend. Unfortunately, this week she has began to feel bad again. Wednesday, she began to run a low grade fever. We were able to contain it and get it down to normal. Today (Thursday), her fever came back and this time it rose to 100.9. My mom worked hard at trying to get the fever to go down. Vanessa ate pop ice's, drank lots of water and sprite. The temperature would not go down past 100.1
We called her doctor and her doctor informed us to get her to her office immediately. We arrived and of course they took blood for labs. Dr. Lee observed Vanessa and immediately admitted her to the hospital. Vanessa is currently at the ETMC in Tyler in room 6624. She is expected to remain in the hospital until Saturday, if not Sunday. She is currently receiving IV fluid as well as anti-biotics intravenously.
Later tonight, she will be receiving 2 pints of whole blood and 1 pint of platelets. Please pray for her battle with this infection, whatever it may be. Her spirits are still doing pretty good, and she feels every prayer each of you are saying for her. We thank you as always and appreciate you all. God Bless!!
Monday, July 14, 2008
Here we go again...
I'm sorry, I'm having a hard time writing this blog. Here are some specific prayer requests for right now: I have developed neuropathy in my hands which is a numbing sensation, so as you can probably guess, it is pretty hard to do a lot of things because I can't feel my finger tips or palm of my hands. Please pray this goes away. Also, I have had some bleeding which is very dangerous because it can cause my counts to drop too fast. Please pray for my abdominal pain. It has gotten better, but has not disappeared yet.
Thank you so much for all your prayers and support. I will try and update again tomorrow when I feel a little better. Just wanted to get an update to all of you!!
Tuesday, July 8, 2008
ETMC in Tyler
Another update from gold ole me because Vanessa is currently unable to do it. We arrived back in Tyler yesterday evening and went straight to the ER. There were about 50 people waiting to be seen. I informed the nurse that she was neutropenic and they took her straight back and started treating her. She was given some demoral and then shorlty taken away to get a CT Scan. About an hour or so later she was admitted in to the hospital for over night observation. We made our trip up to the 6th floor and we got to see all of our wonderful nursing staff. What a relief it was to see them after our experience in Monroe.
This morning, Vanessa had to eat some radioactive Frosted Flakes. They then put her into some type of machine and minitored her stomach for about an hour to see how it reacted to food. During the day, she remained in an intense amount of pain. They continued giving her demoral and phenegran. We are still awaiting all of the results from the tests and hopefully we will have them all in the morning. We need to find out why she is in so much pain in her abdominal area and back.
We believe and trust that God has his hand over her and guiding Dr. Lee and the treatment. Thank you all again for your thoughts, prayers, comments, gifts, food and so many other things that have definately not gone unnoticed. We love you all and God Bless
With God, We Will Beat This
Sunday, July 6, 2008
St Francis Med Ctr in Monroe, La
When she woke up on Saturday, she was feeling worst. I took her to the closest hospital and we ended up here at St Francis in Monroe, La. The ER staff was wonderful. They quickly got to her and started treating her immediately. They informed us that she would need to stay in the hospital overnight for observation, fluids and antibiotics. We were then sent to the 6th floor. Things up on that floor weren't so inviting. We had numerous issues with the staff and their procedures. We spoke to the hospital reps and informed them of our concerns. She agreed that we had legit concerns and they needed to be addressed. We filed a formal grievance with the hospital. Since then, the staff has been immaculate. They have done things according to their policy and protocol.
This morning, Vanessa woke up with some enduring pain in her back, sides and stomach. The GI doctor came in and visited her and told us he would not be able to scope her due to her blood counts being so low. He stated he may be able to do a CT scan but it wouldn't take place until tomorrow (Monday). Meanwhile, we are currently waiting for a platelet transfusion because her platelets dropped from a 18 to an 8 overnight. So here we are sitting and waiting, and lots of praying.
It sounds like the kids had a blast tubing, jet skiing and playing in the lake the last 2 days. I want to thank Aunt Flora and Uncle Bobby for providing the kids a wonderful weekend and the hard work they put into the planning of all of the events they did with them. We love you guys. I also want to thank Vanessa's mom and dad for keeping the kids at the lake house with them while we took Vanessa to the hospital. Doug (dad) thanks for the jet ski tubing rides you took the kids on. I hope they didn't wear you out.
Please continue praying for Vanessa. She will make it through this and
Wednesday, July 2, 2008
Yuckiness!
Anyways, I was released on Friday around noon. They had to speed up my last bag of chemo to get me out of there, but by that point, I didn't care what they had to do...just get me out of there. I've been very weak, but determined to get up and try because we are wanting to go out of town this weekend for the Fourth of July so I can get out of these walls and I can see some of my extended family which I haven't seen since our wedding. Well, it hasn't been easy. I felt very weak and kind of icky most of the weekend and it has been VERY emotional for me...and depressing. There just really isn't any other word for it. I have had a very hard time expressing why I am depressed other than the fact that I truly feel that God has healed me completely and I feel as though I am doing my body more harm by pumping all these drugs in it. This is just me and I am not going to refuse treatment. Please don't get me wrong. I am trying to get through this. I spoke to my doctor about it and apparently, this depression is normal and she even made the statement that she was wondering when I was going to hit it. Hopefully this weekend will help.
Saturday night, or early Sunday morning, I woke up and was having difficulty breathing. It took about an hour for me to catch my breath. This also happened in the hospital and I believe it is just extra fluid built up in my body. I was finally able to relax again, but Sunday and Monday night, the insomnia hit again. It is amazing all the things you can learn from infomercials in the middle of the night. I now know how to have the perfect skin, if that doesn't work, I know what make-up will make it look like I have perfect skin, the perfect hair, I can get the perfect body by learning and doing the newest and greatest dance moves and in my spare time, I can order the perfect cookware, and can become a master chef. Aren't you all jealous?!?! I'm so glad we pay for satellite tv where there are 600 channels so I can always have something to watch. Well, not sleeping did not help much with my weakness and pain, so my legs and back were cramping like crazy again. Even hydrocodone did nothing for me.
On Tuesday, I had to go in for my lumbar puncture. They doped me up pretty good and she went to work. Unfortunately, after having 5 of these, scar tissue has built up on my spinal column, so it is difficult for her to get through. After a few tries, she decided to send me to the hospital so the radiologist could do it with his magic machine that shows him exactly where to go. I didn't think this would be a big deal until we hit admissions. The admit clerk kept calling around telling everyone I was there for a shot. She wouldn't read the orders and wouldn't listen to us. Finally, about an hour later, they figured out where I was supposed to go and I was all slumped over in a wheelchair (remember, I was drugged!). A nurse found me and let me lay down. I pretty much slept all that medicine off. I layed there for so long before they finally took me back. Before they did, they gave me vicodine. The procedure itself wasn't too bad because of his little magic machine. I slept for about 2 1/2 hours afterwards. I'm supposed to be flat on my back for 4 hours afterwards, but they were ready to get out of there. They made me drink a coke and go to the bathroom and off I went. I hadn't eaten anything all day except two crackers. I got home and we had dinner delivered from our Sunday School class and it was delicious (the first thing that tasted good all week!). I layed on the couch for a little while and then it hit. The ICKY feeling. I made it to the bedroom and needless to say, I got to taste my wonderful dinner again. I threw up all night long. I am pretty sure this is from not laying flat for 4 hours. My doctor said it was one of the side effects, so I promise it had nothing to do with the great dinner!! My dear sweet mother-in-law to the rescue. She was there at first...well, you know. She had a wet washcloth on my neck and face the entire time and she checked on me all night. Thank you so much for being there. Whenever you are sick, you always want your momma, I'm glad I have two wonderful ones to be there for me!
Wednesday (today), I went in to the doctor for a little chemo. It was about 30 minutes long. She gave me some nausea medicine to help with the after effects of last night and it kind of helped. Rob got up first thing this morning and got me a coke icee to help too. For lunch today, we went to Catfish King since I have been craving fish for quite some time. I've been scared to eat it because I didn't know what it would taste like, but it was delicious. I was so excited I think I over ate. The rest of the day has been good, just weak. I get worn out very easily.
Thank you for all the prayers and patience in reading my long blog. I just want everyone to know what I am going through. For a specific prayer for me, please pray that my platelet count stays up so I won't have to travel 2 hours while on vacation to get a platelet transfusion. I have a few more prayer requests for all of my prayer warriors. As bad as I feel it is for me, I'm not the only one going through rough times:
Laura- a sweet friend of mine had an ectopic pregnancy and lost the baby. Laura, I love you and am praying for you and your family!!
Jessica- a daughter of a prayer warrior and friend of the family miscarried her twins. I can not imagine losing a child. You and your family are in our prayers.
Ashley- my little "sister"- she is in the hospital on bed rest in preterm labor. Please pray her contractions stop as it is too early for little Eli to come and join us. I also want her to be able to go home and not have to spend the rest of her pregnancy in the hospital. I love you Ashley and your whole family. Please pray for her mom & dad as they help take care of her, her sweet husband Tim and her other son Evan as I am sure he is trying to figure out where mommy is spending all her time.
Grandma- (see last blog). This is actually Ashley's grandma, so this is added to her family. She is in rehab and from what I understand, doing well. She still has a ways to go. If I got that wrong, I am sorry, but God knows what Grandma needs so please lift her up!
Sully Farrar- a little boy with Leukemia that I have grown to love. He is back in St. Jude's and needs our prayers. http://www.sullivanfarrar.com/
Angie- my former Sunday School teacher. She had her procedure and is in the laying still mode. She has said she has felt some relief, but she still has a ways to go. Please continue to lift her up.
I know this is a lot, but I have been blessed with so many friends and family as my prayer warriors, that I can not just sit by with these prayer requests here and so many of you out there willing to pray. Again, Rob and I are so excited to see where God uses this obstacle in our lives. We have already been blessed by all of you and others who happen upon our blog or hear about us through friends of friends. Each one of you are so special!!! Always remember...
Tuesday, June 24, 2008
Stuck in these four walls...
Yesterday was a great day considering I am in the hospital getting chemo. It started off with my brother and sister-in-law coming to visit and then the visitors kept piling in. Each one of you lifted my spirits more than you could possibly know! It was really surprising how many people came by because we haven't told anyone other than family what room I was in since I was supposed to be moving, so you know I was surprised to see Angie (my former Sunday School teacher) pop through the door. She is so sweet. I also had my friend Julie and one of the attorney's I work for, Jill come by. We had great conversations. Even mom commented on how my entire spirit changed, so if you are in the neighborhood and want to stop by, please email, call or text me or Rob and we'll let you know what room I'm in. If you aren't in the neighborhood, email and texting me are also spirit boosters.
While in town, my brother and sister-in-law went to the blood center to give blood in my name. It was so sweet of them! We have had several people ask about giving blood in my name, so if you would like to, you can give in the Dallas area, Tyler area and Shreveport Bossier for sure. Please just email us at wewillbeatthis@gmail.com and we will send you the personal info you need on me to give. If you aren't in any of these areas, just contact your local blood center and find out what info you need and we will be glad to do that for you. Please make sure they know you are just making a donation in my name and not a direct donation into my account. There is too much testing that has to be done and we would have to have direct orders for that from the Doctor. If you don't feel like giving in my name, I would just like to encourage you to give. All the blood banks are low and you never know who's life you are going to save. Rob got a call the other day that his pint he gave went to save a 5 year old boy's life who had been in a go-kart accident and had severed his liver. You just never know who needs a little help.
My awesome big brother (they had to stick him 3 times!!) Love ya bunches!!!
Both of them filling up the bags...
Giving blood is so important, especially since I have learned about so much more about cancer and chemo. When you hear about someone going through chemo, you don't hear much about the blood transfusions and platelet transfusions very often. I thought this would be a rare thing, but in my case, the week after my first round, I had to have a blood transfusion and had 2 pints put in, the second round, I had a platelet transfusion, and as I type this, I am having another blood transfusion of 3 pints of blood. They did one bag, had to start my 3rd round of chemo, and then I will get my other 2 pints. Thank you so much to each of you who have already donated in my name!!!
I didn't sleep too well last night. It seemed every time I would doze off my IV pump would go off or a helicopter would take off. Hopefully tonight will be better. It couldn't be as bad as my mom though. Since we are in this lovely little room all they have to sleep in was one of those fold out chairs instead of the fold out couch like in the suites. She made it through the night, but she MIGHT end up in one of the girl's beds tonight and I wouldn't blame her one bit!! I also had another lumbar puncture this morning. I had a headache around 3:30am this morning and so they gave me some hydrocodone to tame it before the LP. They also gave me Phenergran to help with it along with my normal meds. So needless to say, I slept for quite awhile after the procedure. The spinal fluid came out clear...good news!! After that, she went ahead and stitched back in my PICC line. It wasn't too bad, just the numbing shots and a few seconds later it was done.
That's really all that is happening here in my four walls. Thank you again to each of you who have been praying for me and supporting me and my family. I want to thank those of you who lifted up our friend James. As of right now, everything in benign which is wonderful. They will recheck him again in 90 days. BUT, I have another prayer request. My good friend's grandmother had brain surgery a couple of weeks ago and has been in ICU and is now in rehab. There are only 7 documented cases of her brain condition. Please pray for her. I just call her grandma, so if you pray for grandma, God will know who you are talking about. Also, pray for her family as they help take care of her and make decisions in her care. Her husband is also concerned, so pray for him too. Also, our sweet friend Angie is having a procedure tomorrow for her 3 leaking disc in her back. She is a lot of pain and needs all our prayers. This is a new procedure and she will need all the prayers she can get. And last but not least, no news on the bone marrow biopsy. Keep praying!! Each and everyone of you are awesome! We love you!
With God, WE WILL BEAT THIS!!!
Monday, June 23, 2008
Bring on the Suite!
So now for the treatment. This one will be just like my first treatment. Please pray that it goes smoothly and I don't get as sick as I did the first go round. They have taken my blood to the lab to make sure I am good to go, hooked me up to the IV pump with fluids and brought me 21 pills to take. Yes, you read that right...21!! By the end of the day, I think it comes to around 35 pills I have to take. Unfortunately, both of the stitches holding my PICC line in popped and so they can't start the chemo until they get the okay from the doctor or the orders to restitch it. So...we wait.
On Thursday, I had another bone marrow biopsy. They totally knocked me out for that one. It was a different type "knock out" than for surgery or something. I was only out for about 30 minutes (if that) and I didn't feel all groggy afterwards. I just felt like I had taken a nap. I thought surely this was the way to go. I later found out that it wasn't a walk in the park like I thought. The soreness was about 10 times worse than when they did the biopsy when I was awake. It hurt to roll over, sit up, stand up, walk, sit down, lay down...etc. I don't know why it was worse though. I don't know if the numbing medicine they put in when I am awake helps with the soreness or if they had to dig or go in multiple times when they knocked me out. The doctor was gone when I woke up so I haven't had a chance to ask her. I don't have the results yet, but hopefully in the next day or two I will.
Again, we cannot thank each of you enough for all your prayers and support. Every thought, prayer, e-mail and comment mean so much to us! We are still very excited to see what God has in store for us! For specific prayers right now, pray that I will get through this round smoothly, that next week won't be so bad so I can enjoy the 4th of July with my family, and that the girls have a great week at camp learning more about Jesus. PLEASE PLEASE also remember our friend James. He had his lymph node removed on Thursday and should be finding out the results of the biopsy this week. Please pray it is nothing!!
Wednesday, June 18, 2008
Bone Marrow and Blood Counts
Now for the bone marrow, it was time for them to do another bone marrow aspirate. I was so nervous. The first time they did one, I took a Xanax before we went, so I was nervous but not like I was yesterday. My doctor promised to HEAVILY medicate me when I got there so I didn't bother with the Xanax. Well, the nurse came in and had Ativan and Demerol, which is the same medication they give me for the lumbar punctures. I told him that the doctor promised me "HEAVILY" medication. He went and talked to her and came back with some phenegran. I was pretty loopy after that. Well, they started the procedure and it still hurt like crazy. They couldn't get any marrow to come out, so they had to try again and do another puncture. This was fun! Well, they still couldn't get any marrow out. Apparently, my bone marrow clotted when my white blood count went up. I'm not a "medical" person, so this may be wrong, but from what I understand, that could cause it. Well, they decided not to hurt me anymore, so tomorrow (Thursday), I go in at 7:00am and they will completely knock me out and do the procedure until they get some bone marrow. Please pray they get it pretty early in the procedure because it does leave me sore. Also, please pray that there is no problem with the anesthesia. I have never had any issues with it, but just in case.
Thank you all for all the emails we have received recently and for all the prayers. We appreciate each and everyone of you!
Monday, June 16, 2008
My Weak Week
On Sunday, I was able to make it to Sunday School, but I was pretty tired after that. I came home and we ate dinner and then I took a short nap. My parents, Patsy, my brother, sister-in-law and nephews came in yesterday for Father's Day. It was really nice to see everyone and get to have a "normal" day. Today, I am just kind of in a daze. It is called chemo brain. I've been exhausted all day, but not sleepy.
Tomorrow morning at 9am, I go to the doctor where I am supposed to get another bone marrow aspirate. I know, so thrilling!! I just can't wait!! They are going to be checking to see how much my bone marrow has cleared. They did the last test through my blood, but they don't know for sure until they get bone marrow. My counts have to be up to do it, but I'm not sure what they have to be.
I'll let y'all know what the doctor says. Thanks for the prayers!!
Saturday, June 7, 2008
Hello Home...Good-bye Tastebuds
I also lost my taste buds this week. I've heard that everything will taste like metal or sawdust, but for me, that isn't the case. Everything tastes like it has a coating of Vaseline over it. It is absolutely disgusting. I can still tastes some hints of flavor in some things, but hamburgers and french fries are done! I've been able to eat some toast and crackers and then tonight an egg sandwich, but who knows how long it will be before that tastes bad to me too. Rob bought me some Ensure to help get my nutrients, but those things are bad to begin with, at least I'm trying.
I know this blog isn't upbeat, but I'm not upbeat right now. Remember, I want you to experience what I am going through. Thank you for your prayers. They are holding me up right now. For some specific prayers, please pray that I will get stronger instead of weaker these next few days and will stay that way through this round. Pray that I will keep some of my taste buds so I can get some nutrients. Pray for my sanity to get through this and for God to give me the strength to get through this.
Thursday, June 5, 2008
One more day...
Last night my stomach felt a little ugh, and I got really cold, but my temperature was never above normal. I finally just ended up going to bed and slept most of the night. At least as much as you can when you are in the hospital.
Thank you to each of you who have been praying specifically for me not to be unsteady or light-headed. Your prayers have definitely been answered. Please keep them up. The doctor told me this morning that this weekend and early next week should be my rough time again, so if you can add that to your list, please do so. All of you are great and have kept me fighting this fight. Thank you so much!!
Tuesday, June 3, 2008
Lumbar Puncture and Lettuce
Right after that, they brought in lunch. I had specially ordered a ham and cheese sandwich. Since my counts are so high right now, I am not neutropenic for the time being so I was able to have lettuce, tomatoes and pickles on my sandwich. It was so good! I know it might only be for a little while, but I'm enjoying it! Last night with dinner, I was served a small salad. Granted, it was only lettuce and ranch dressing, but it was one of the best salads I have ever had (next to Olive Garden of course). It's amazing what you miss when you can't have it.
For the rest of the day, mom and I took a walk around the oncology floor and then we sat on the couch and watched TV. Once my bag of chemo was done around 5pm, they came in and had to get a blood sample from me. Again, they couldn't take it from my PICC line, so I had to get stuck. Yuck! But the good news was, I was going to be unhooked for a few minutes so I was able to take a shower...yipee! Again, the simple things...
Well, I still feel good. I haven't had the unsteadiness and light-headedness that they said I would, so that is all of your prayers. Thank you so much!
Monday, June 2, 2008
Round 2
My mom came in to stay in the hospital with me and she brought me a gift from one of her neighbors. It is a prayer quilt. There are sets of string sewn into the blanket, and when someone says a prayer for me, they tie a knot. It's just a visual reminder of people praying for me. It's really cool. Also, housekeeping just came in and she asked if she could say a prayer for me. It was really nice. Through this process, it is amazing how people have offered up prayers for me without even knowing me. It is so awesome!
Thank you to each of you for all of your prayers and support!
Saturday, May 31, 2008
Our God is an AWESOME God!
I am so thankful to each of you who prayed for my counts to go up. God is the Great Physician and He is so awesome. I could not make it through all of this without Him.
I will be entering the hospital on Monday morning for my next round. I believe this round is only 3 days, but it is supposed to make me dizzy and unsteady on my feet. I will try my best to update, but we will just have to see how the chemo makes me feel. If I can't, then Rob will be updating.
Thursday, May 29, 2008
It's a NO hair day!
Me and my sweet friend Crystal. She shaved her head with me to help me get through the experience.
This is my friend and hairdresser Sharon.
Crystal went first. Her first expression was shock.
About half way through we started laughing
Then it was my turn- Do you like my fake smile?
Even though I knew it was coming off, I was still nervous.
The pile of hair
And here we are...
Thank you so much Crystal for doing this with me. The laughter (mostly coming from our husbands) made it a fun experience!
Now for a health update: I went to the doctor on Tuesday and everything looked good. All my blood counts were up...even my white blood count. My platelets are going up as well. They have to reach 100 before they can start my next round of chemo. They were at 65. Please pray they will reach 100 so we can start on schedule next Monday.
I have been feeling very good lately. Saturday was the last day that I had to lay around most of the day. Sunday morning, I was able to go to Sunday School which was so special to me. I was pretty lazy the rest of the day because it kind of wore me out, but I still was so glad I got to go. On Monday, I was able to be up the whole day and sit with the family and some friends. Each day I get a little stronger. Thank you so much for each of your prayers. I know it is because of them that I am getting stronger.
WITH GOD, WE WILL BEAT THIS!!